Guestbook

Thank you for visiting our pages. We would love it if you would Add to this guestbook we are keeping!

I attended your annual conference this past October in Honolulu. As one who attends many such conferences, I was so very pleased, and a bit overwhelmed by the wealth of information, resources, and commitment your community provides to family members and individuals who have acquired brain injuries. Please keep me on your mailing list and let me know when you plan to have the next one. You do a great job. Many similar organizations could learn a lot from you.... BRAVO
Francine Aron <faron@mediaone.net>
Los Angeles, CA USA -

I am Recreation Co-ordinator with an organisation called Headway Illawarra. I help to organise outings and activities for people with acquired brain injury in the Illawarra region, which is just south of our capitol city, Sydney. I am also the editor of the Headway magazine called Thinking It Through, and I hope I can get permission to use some of the life stories and creative efforts which appear on your site. This process may help some people down here to put down their thoughts and remember their experiences.
Peter Knox <news@headway.org.au>
Wollongong, NSW Australia -

Gathering information for a family member who lives in HA, but found me through the internet. Hope I can be of assistnace for the entire family.
Chris Murrell <cmurrell@siskinrehab.org>
Chattanooga, TN USA -

I was assaulted by someone 7 months ago and was rushed to the Queens Medical Center with bilateral subdural hematomas. Things looked bad for me but with the support of my wife, I was able to make considerable progress. I still have many bridges to cross, but with my wife's support and my faith, I feel we can get through this. I hope that others are able to have the support that I did. God Bless
Ben Leversedge <buster@aloha.net>
Honolulu, HI USA -

MY SISTER CECILIA WAS INVOLVED IN A CAR/ PEDESTRIAN ACCIDENT ON AUGUST 22, 1998 ACCORDING TO WITNESSES SHE WAS THROWN INTO THE AIR AND LANDED ON HER HEAD THE ONLY INJURY SHE SUSTAINED WAS THE RESULT OF HER HITTING THE ROAD WITH THE LEFT SIDE OF HER SKULL HER BRAIN WAS THROWN IN THE OPPOSITE DIRECTION INJURING THE RIGHT SIDE, EMERGENCY SURGERY WAS PERFORMED IN ORDER TO REMOVE BLOOD CLOUGHTS. CECILIA HAS BEEN IN A DEEP COMA EVERY SINCE THAT DAY THE PROGNOSIS IS DIM, OUR FAMILY FRIENDS AND MYSELF ARE ALL STILL PRAYING THAT GODS WILL IS TO BRING HER BACK TO US. IF ANYONE WOULD LIKE TO DISCUSS MY SISTER OR COULD DIRECT ME ON WHERE TO GET IN TOUCH WITH SOME MORE PEOGRESSIVE BRAIN MEDICINE PLEASE CONTACT ME @ PORTEGA@KIMLEY-HORN.COM OR 602-9061194. THANK YOU.
PAUL D. ORTEGA <PORTEGA@KIMLEY-HORN.COM>
PHOENIX, AZ USA -

Greetings to all those who trudge/tread down the road from a Traumatic Brain Injury... I am a "Survivor" nearing 8 years post following undergoing 2 emergency brain surgeries, ten days apart. Since these near death experiences occured, I have somehow managed with the help of so many to piece together/bind a book, titled, Poetic Awakening, which is Inpirational/Spiritual in content, yet cuts across all religious barriers. This book is not only Inspiring for the "Survivor," also for the loved ones who experience a rough ride on the road to recovery. To receive your copy, e-mail me at mtnbliss@yahoo.com Please include a mailing address where you can receive your book order form in the mail. May the road rise up to meet you in recovery. John Snyder, "Survivor" and Author
John Snyder <mtnbliss@yahoo.com>
Young Harris, GA USA -

Ten months ago my 33 y/o friend had a seizure. His heart and breathing stopped and he went into a coma. It has been difficult to convince evaluators and medical staff that he can be rehabilitated. His family has had to learn to coach consistent response from him to show evaluators of his abilities. Finally he has been accepted to a rehabilitation program, but on a limited basis. We have been advised to seek grants for additional therapy. If anyone can help me with this, please email me or call Karen at 621-1432. Thank you very much.
Karen Luke <nahele@juno.com>
Wahiawa, HI USA -

7 years ago my husband and I were hit by a drunk driver as a result my husband received a head injury. At first the doctors didn't think he would even live, but he did and when he started coming out of his coma no one could understand what he was talking about. He put words completely out of place and it was difficult to know what he was talking about. Then he went to rehab and started talking better but didn't seem to recognize us.Suddenly he got some memory back(mainly his early years). He is able to hold a job and relearned how to drive. His personality is totally different than before the accident and it's been a hard seven years, but I feel that we are blessed in many ways. He could be a lot worse off.
Vicki Cato <c1977@gte.net>
Texarkana, TX USA - Content-type: text/plain Tue Apr 28 16:21:13 EDT 1998

if anyone could please help me with disciplinary problems with children who have tbi i would greatly appreciate it. my 7 year old stepdaughter was hit by a truck while riding her bike in aug. of 97-she was released from rehab finally in dec. of 97. she is doing remarkably well in relearning everything from swinging to her abc's to counting to 100 again. she will have to take summer school to get herself back up to the 2nd grade level and will retake 2nd grade again next year. we couldnt have a more blessed child than this one who has come so far. she was chosen by the ronald mcdonald house in kc mo. to be their child of the year due to her accomplishments. now we are faced with a problem has to disciplinary problems (trivial really i know) but even in school with her specialists the attitude of i wont and i dont have to and sometimes just being hateful with authority figures and sometimes other children is a real problem. we have tried the timeout method which is what was agreed upon by the medical staff in kc but it isnt showing any type of improvement. if anyone could please give us some ideas it would be greatly aprreciated. thank you-
jacque <lancel@midusa.net>
tyro, ks USA - Content-type: text/plain Mon Apr 13 23:51:34 EDT 1998

I really like reading this page my class is doing a project on the barain
matt phillips
buford , ga USA - Content-type: text/plain Tue Jan 27 08:18:43 EST 1998

We are just begining to enter the internet portion of our prevention program, and thought we would see what our fellow associations are doing as far as web sites, we hope to have our site up soon! We hope El Nino doesnt move you closer to the mainland:) Jon
Jon Hoscheit <biat@earthlink.net>
hendersonville, tn USA - Content-type: text/plain Mon Jan 26 15:36:57 EST 1998

Hi- I'm an attorney in the Birmingham, AL area and am currently representing Debbie Wilson, an epileptic, who has been denied access to various local restaurants and retail establishments because she is accompanied by a service dog. I am interested in getting some more information regarding the medical consequences of this condition. I would appreciate anything you could send me either via E-mail or snail mail. Thanks.
Kevin Hays <umplaw@aol.com>
Pelham, AL USA - Content-type: text/plain Tue Sep 16 14:24:48 EDT 1997

Hi, I'm a neuropsychologist, working in a rehab center with children and adolescents with very severe head injury. Some of them are (still) in a vegetative state. We developed a stimulation programm for increasing the level of awareness in our patients. I'm very, very interested in other programms with the same goals. Does anyone knows of specialized stimulation programms for comatose or vegetative patients? Pleas let me know. Thanks, Henk
Henk Eilander <H.J.Eilander@net.HCC.nl>
Tilburg, N-Br Netherlands - Content-type: text/plain Mon Sep 15 16:28:28 EDT 1997

Hafa Adai! I am interested in getting some documents regarding your Articles of Incorporation and Bylaws...Guam is very much interested in networking with you!
Ed R. Chanco <dvrcam@ite.net>
Agana, GU USA - Content-type: text/plain Thu Aug 14 21:00:48 EDT 1997

Hi, I am the Mom of a man head injured in 1973 thanx to a drunk driver. I live in Marin County, California; founder of CRESCERE, Inc., a non-profit attempting to develop residential services for adult Northern Californians. I am also interested in legislation to help TBI survivors and would like to know what other states are doing legislatively. You can e-mail me at ladeyj@ix.netcom.com.
Jenny Houston <ladeyj@ix.netcom.com>
Fairfax, CA USA - Content-type: text/plain Sat Jul 19 15:47:09 EDT 1997

Aloha. My name is Larry Boles. I'm a speech pathologist, and a professor of speech pathology at the University of Hawaii. It's great to see this webpage up and running, and great to hear you all expressing yourself here. If anybody has questions about communication therapy please call me or email me. Keep up the good work PBIA!
Larry Boles <boles@hawaii.edu>
Honolulu, HI USA - Content-type: text/plain Wed Jul 9 02:15:38 EDT 1997

This is a really good page I'm impressed. Mark PHIA member.
Mark Fratzke <mfratzke@hawaii.edu>
Honolulu, HI USA - Content-type: text/plain Wed Jun 4 00:58:38 EDT 1997

Hi!! Just doing some research for a brand new non-profit organization called Head Injury Awarness Foundation, Inc. Address is 6310 Birdcage Street, #24, Citrus Height, CA 95610. FAX #916-723-7594. They don't have E-mail as yet, but a web site is in the planning stages. This is a California and Federal Non-profit status corporation. They are currently in need of monitary donations as well as a copy machine and a "speedy" computer. If you can help, just fax your information. We all thank you very much.
Darline M. Lane <dmlane@ix.netcom.com>
Concord, CA USA - Content-type: text/plain Thu May 8 20:05:38 EDT 1997

Hi, I am a trainee dramatherapist currently reasearching the role of dramatherapy in traumatic brain injury rehabilitation. I would love to hear from anyone who could offer their perspective on whether or not they feel dramatherapy has a role, or if support groups in general did / still do prove useful. Any information would be valuable, but please feel free to drop me a line anyway. Thanks.
Rachel McArthur <r.mcarthur@herts.ac.uk>
USA - Content-type: text/plain Mon Apr 7 09:41:06 EDT 1997

hello all pleased to see that chris and debbie are still on the net. I promised some stuff years ago and am starting to get to it, year or two later....:-) regards brian
brian weir <bdw@adan.kingston.net>
kingston, ontario Canada - Content-type: text/plain Sat Jan 25 16:22:45 EST 1997

I'm just getting started networking with other persons with brain injury on the Internet. I am six years post and have a background in marketing and business. My injury was considered "moderate" but it is usually invisible to others. I am most interested in networking with professionals with brain injury (I call us "BIPs" for "brain injured professionals), and also people with so-called "mild" injuries or invisible injuries (because we get a double-whammy when we and other expect too much). Opps, I can't get back to the beginning and can't remember if I wrote my name and address or not. Guess I'll do it now and risk repeating myself. My name is Kathy and my e-mail address is brainbk@cdsnet.net. My website is http://brainbook.com. Visit me there and let's chat. Kathy
Kathy Moeller <brainbk@cdsnet.net>
Medford, OR USA - Content-type: text/plain Sat Oct 19 12:27:48 EDT 1996

Greetings from the South Pacific. Our son "Fraser" was a 16 year old competitive cyclist, holder of age group championships etc. In April 93 he was knocked off his bike whilst training and suffered frontal lobe damage He was in a coma for 38 days and went into our public health head injury rehabilitation centre He was in hospital from April to Oct 93 and in Feb 94 started racing again. His aim is to make the New Zealand team for the 2000 Olympics. If anyone has expereinced something similar re this sport after serious head injury I would like to make contact with them. Reagrds to all Kesson
Kesson Sharp <kesson@ihug.co.nz>
Auckland, New Zealand - Content-type: text/plain Wed Sep 25 07:05:29 EDT 1996

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USA - Content-type: text/plain Fri Sep 13 03:29:54 EDT 1996

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